A movement disorder specialist is a neurologist who has received additional training in Parkinson’s disease and other motor disorders. Not only do you need to find one, you need to find one that you like. Take the time now to find a specialist you can work well with over the long-term. It is ok and encouraged to find a good match because this healthcare professional will be working side by side with you for years to come.

American Parkinson Disease Association created a handbook outlining the fundamentals of Parkinson’s disease. Although it is a lengthy read, the table of contents serves as a guide to highlight topics such as how diagnosis is completed, a synopsis of treatment options, and tips on what to expect at the first physician’s visit. As you learn more about the disease you will gain confidence as the leader of your own healthcare team.

Parkinson’s UK created a short list of questions to ask at doctor appointments. Start with their suggestions as a template and add your own as you become more familiar with your symptoms. Bring  your phone for note taking or designate a PD notebook for all of your appointments. This will help guide conversation with your healthcare  providers.

There are many ways to find support when you have Parkinson’s disease. Local groups and online forums are a valuable resources in finding community. Patients Like Me is an online forum for people with various diagnoses and a place to discuss your symptoms, your wins, your struggles, and much more. Either alternative can provide the community needed to gather strength in the difficult days and celebrate in the great ones. Click below to explore Patients Like Me. Also visit the Support Systems resource for additional options.

Parkinson’s Foundation explains the benefits of exercise in Parkinson’s disease including the science behind why and how it works. Explore their framework for integrating exercise into your daily routine, the associated research, and types of exercise you may find helpful.